way to be with me, to talk to me, to cheer me up. And my family, of course, and the letters still pouring in. I used to love to listen to the people in the letters.
But the time would come when everybody would have to go. Iâd be given a sleeping pill at about ten-thirty or eleven oâclock, but by one or two it would wear off. Iâd wake up and be staring at everything, staring at the wall, staring at myself, staring at the future, staring in disbelief.
The thought that kept going through my mind was: Iâve ruined my life. Iâve ruined my life, and you only get one. You canât say, âIâve spoiled this one, so can I have another one, please?â Thereâs no counter you can go up to and say, âI dropped my ice cream cone; could I please have another one?â I thought, Iâve ruined not only my own life but everybody elseâs as well. Iâve ruined Danaâs life, Iâve ruined Willâs life, Iâve ruined Matthewâs and Alexandraâs. This is going to be a huge burden on everybody. Itâs not my injury, itâs our injury. Our entire family is hurt. Weâve all been destroyed by this stupid thing that happened. Over a nothing jump. For some reason, I didnât get my hands down and break my fall. Iâm an idiot. Iâve spoiled everything. Why canât there be an appeal? Why isnât there a higher authority you can go to and say, âWait a minute, you didnât mean for this to happen to me. This kind of thing doesnât happen to me .â
I was still in a state of disbelief and very afraid. A large part of the fear was because I couldnât take a single breath on my own. And the connections of the hoses on these ventilators are tenuous at best. The nurses put tape over the joints, but they donât always hold very well, and you lie there at three in the morning in fear of a pop-off, when the hose just comes off the ventilator. I had several. After youâve missed two breaths, an alarm sounds. You just have to hope that someone will come very quickly, turn on the lights, figure out where the break is, and put it back together. But itâs not like holding your breath underwater. I canât hold my breath. In my case, thereâs no breath left in my body. When I exhale, the breath is gone.
So when you have a pop-off, there is no air in your lungs except for a tiny amount in the nooks and crannies. If youâre pretty healthy, the percentage of oxygen that is getting to your brain can probably stay in the seventies, which means you can last a couple of minutes, but those are very, very anxious minutes. The nursesâ station was not far away, but I was never sure how closely they were paying attention. They had many patients, I was alone in my room, and I had absolutely no control. The feeling of helplessness was hard to take.
Becoming completely dependent on other people is a terrible adjustment to make. I lay there for a month floating among various moods and feelingsâgratitude, horror, self-pity, confusion, anger. There was one doctor at UVA who was the bane of my existence. She came in at all hours of the day and night to poke and prod, and I realized I didnât have any sensation below the trapezius level, just outside my neck muscles. She would also talk to me as if I were three. Finally, I couldnât stand it anymore. I yelled, âFuck you, Iâm a forty-two-year-old man. You treat me like one or donât come in this room again.â That chastened her a little bit. I know she intended no harm or discomfort, but she increased my feelings of despair and loss, humiliation and embarrassment.
Alone for a time trying to come to terms with my situation.
I know it may seem odd that I felt humiliation and embarrassment. But those are the emotions I tend to feel whenever something goes seriously wrong in my life. On my first flight across the Atlantic, I was given an incorrect ground
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